Tuesday, November 16, 2010

Miracle Milestone Part 2: Greggy's Story



Our story, so far... My nephew; Greggy, or Young Master Gregory, as he's often referred to these days, came home from school one day with a bump on his head. He hadn't hit his head on anything, no one had hit him. In fact, he had no idea it was there, let alone where it came from. That bump was the first of 2 miracles, because it caused doctors to look inside, and find something that would've otherwise gone undetected, and burrow into his brain, most likely leading to his death some 13 years later.

Our nighttime show; "The Bone Jangler," first hit the television airwaves in September of 2001. In September of 2005, I created a 2nd show, a show that would air in the daytime, and be aimed at an all-ages audience, a show that Greggy could participate in, and call his own (even if I do all of the editing, etc.). On the first episode of "The Bone Jangler's Daytime Dungeon," I hosted the thing all by myself. Before we shot the 2nd episode, something called a "benign dermatoid," a sort of cyst/tumor combo, was found lurking inside of the area between Greggy's skull, and his brain. An operation would have to be performed, a very risky operation with a mere 1% success rate. The other 99% of people who have the operation die, or (worse, in my opinion) become a "vegetable." Thankfully, 1 of only 3 surgeons in the world capable of performing the procedure operated out of the Chicagoland area. The surgery was scheduled for Wednesday, November 16th. If we were to make certain that Greggy were ever to appear on TV, on his show, no less, we had to hurry.

On Tuesday, November 8th, 2001, we made our way to Fabyan Park, a huge sprawling piece of land, spanning both sides (and the middle) of the Fox River, that was once the home, and property of an eccentric man by the name of Colonel Fabyan, a guy who reminded me of Teddy Roosevelt, only with a lot more money. There, we taped a good hour's worth of footage of Greggy & I chewing up the scenery, and frolicking in the Autumn leaves. It was a fun shoot, and, whatever awkwardness there was with this being 5 year old Greggy's first time in front of the TV camera, it was more than matched by the cuteness of the whole thing. Greggy was, and still is, a good looking boy, and he was so small then. Gone was the growling, swaggering Bone Jangler, and in his place was a doting uncle/father figure, proud of his boy, and eager (in more ways than one, due to the impending surgery) to get him on TV, for all of the world to see. Later, after the show had aired locally, and then made it's way across the country, I'd receive e-mails from viewers saying things like, "I never thought a Bone Jangler show would make me cry, but I did." These comments were made in reference to the end credits scene in the show, where Greggy & I are playing Hide and Seek, etc., in the leaves. I write them back, and tell them, that, if those scenes made them cry, then, they'd best break out their Kleenex again, because the story behind the camera was much more moving.

With Greggy's surgery scheduled for the morning of Wednesday, November 16th, 2005, I was in a bad spot. Back then, I owned a comic book shop/used bookstore, and, Wednesday was (and still is) new release day. There was no one else who could operate the store that day, much less handle all of the pulling of ordered product for subscription customers. I would be unable to be in both places at once, and, if I were to close up shop that day, it would've severely hurt the business. Greggy's father, and grandmother, would be there for the surgery. I forgot to mention earlier that Greggy's mother died when he was only 1 year old, and, thus, couldn't be there, at least not in a physical sense.

That day, 8 years ago today, was a very hard day for me. I got up extra early that morning, and raced to see Greggy, as he prepared to leave for the hospital. It was a very difficult time, and, I must admit, my eyes are tearing up a bit as I write these words. I looked at my boy a good long time, long enough to get a good look at him at every opportunity, but never so long in one stretch to alert him to the fact that he was headed off for something much, much more serious than he was led to believe. As I looked at him, I wondered to myself, "Is this the last time that I'll see you alive? Is this the end?" I may be omniscient as I choose to be at any given moment, but, sometimes, some things are beyond even me. The thought that he might die on the operating table, or become a lifeless "vegetable," was hard to fathom, yet, quite possible.

I made my way to my shop, and tried my best to go about performing the necessary duties associated with new release day. Lots of my customers took an early lunch that day, and spent it at my shop, so as to be there for me, and for Greggy. Online, at a little place called MySpace, thousands of friends rallied around, and, were "there" with me, with us. Hundreds of strangers were also there, having been forwarded the information via friend bulletins. Lisa Marie Presley, someone I've yet to meet, learned of Greggy's situation, and had devoted the front page of her website to Greggy, asking her fans, and friends, to pray for my little boy. I may not have been at my boy's side, but, I was not alone.

The surgery was scheduled for about 10:00am. At about 9:30am, I received a call. I knew it had something to do with Greggy's operation, as we didn't open until 11:00am, and no one ever called the shop until around that time. I nervously answered the phone. The surgery was over. They'd started it much earlier. The doctor, and his staff, were not anxious to have to cut a 5 year old, motherless, boy open like that, and perform a surgery that had only a 1% success rate. So, they'd decided to get on with the delicate work at hand. I was afraid to ask how it went, the earliness of the call having thrown me off. The doctor had previously thought that the dermatoid was the size of a pebble. When he got in there, he discovered that it was actually the size of 2 golf balls! Regardless of that unexpected surprise, the surgery went off without a hitch, and went very quickly. The doctor couldn't believe the result, and referred to the outcome as a "miracle." And, of course, it was a miracle. As the doctor had gone in to perform the surgery, he'd stated that it weren't his hands that were going to be performing the surgery, but, rather, God's.

Greggy came home from the hospital much earlier than was expected, coming home just 2 days later. Friends, fans, and complete strangers, alike, were so kind to my little boy, and sent cards, letters, and presents (mostly of the Monster Kid variety), to Greggy. He was blown away by the incredible kindness shown toward him, and couldn't fathom that people from all over the country knew who he was, and wanted to send him these things. It went a long way towards helping him with the healing process. While he didn't quite know it at the time, and is only just now beginning to catch on, 8 years later, he'd had a huge chunk of his skull permanently removed, and replaced with a soft, organic paste/mesh. The idea being that, with him being as young as he was, his skull would grow, and fuse together with the mesh, and eventually solidify.

When he returned to school a few months later, he was required to wear a helmet for certain activities, like gym class, which he wasn't supposed to participate in at all. As it turns out, many of his schoolmates made fun of him, having to wear that helmet, one of 2 scars associated with his surgery that he bears to this very day. However, he is alive, and well, thanks to our friends, fans, peers, celebrities, complete strangers, and, of course, God.

I have more to say about this subject, but, find myself unable to at this moment. Thank you to everyone who was there for my boy, those 8 years ago today! And, if you're one of those who believe that miracles aren't possible, think again.








4 comments:

  1. Miracles do indeed happen. Some are so small, they are missed by many, yet those in the know see and feel them. Then there are those huge miracles, like Greggy's, that if one never believed before, they certainly believe now. I wasn't aware or in your friendship during this sweet young man's illness, but was delighted to read your post about the operation and his full recovery. Thank you for touching my heart and I wish your nephew a long, healthy life with those he loves the most. Peace, love and light...Paula Lizzi

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  2. You -and your sharing of Greggy's story have touched me, deeply... and I can Honestly say That I love you. I always smile from the heart each time that I see pictures of You, Nocturna, and of Greggy... Now- it's from my soul. <3 ~Darkdonna

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  3. Gads. Miracles, indeed.

    Much love to you and yours..albeit 5 years too late. **hug**

    - Dusti

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